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Solve ME/CFS Initiative

You + ME Registry and Biobank

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To understand why some people have long-term effects of COVID.

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Citizen ScienceHealth & MedicinePolicySocial Sciencelong-covidsocial determinants of healthbig datapublic healthresearchpost-viral chronic illness research, post viral chronic illness, covid, tracking app,cbprcovid-19internationalcommunityhealth disparities
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The You + ME Registry and Biobank is an international community of patients, caregivers, healthy allies, researchers and clinicians committed to furthering research on post-viral chronic illness.

There is emerging evidence that many individuals who were infected with the novel coronavirus, which causes the COVID-19 disease, are suffering with persistent symptoms – the “long-haulers”. The pandemic offers an opportunity to understand susceptibility or resilience to these long-term effects, and we may well also shed light on ME/CFS and post-infectious fatigue syndromes following infections other than COVID-19.

When you sign up for You + ME, you will be taken through what we call a “Study Visit”, or, a collection of surveys designed to capture a full picture of your general health. Those living with long-COVID or ME/CFS will also be invited to download the You + ME Tracking App, an optional resource that can be used to generate data and identify patterns in symptoms over time.

You + ME encourages a culture of open data sharing and increased collaboration between all stakeholders in post-viral chronic illness research: patients, control volunteers, clinicians, and scientific researchers so that we may further our understanding of post viral chronic illness, together.

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Minimum Age: 13

Languages: English

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